Development and planning of health care services requires robust health information
systems to define the burden of disease, inform policy development, and identify opportunities
to improve service provision. The global coverage of kidney disease health information
systems has not been well reported, despite their potential to enhance care. As part
of the Global Kidney Health Atlas, a cross-sectional survey conducted by the International
Society of Nephrology, data were collected from 117 United Nations member states on
the coverage and scope of kidney disease health information systems and surveillance
practices. Dialysis and transplant registries were more common in high-income countries.
Few countries reported having nondialysis chronic kidney disease and acute kidney
injury registries. Although 62% of countries overall could estimate their prevalence
of chronic kidney disease, less than 24% of low-income countries had access to the
same data. Almost all countries offered chronic kidney disease testing to patients
with diabetes and hypertension, but few to high-risk ethnic groups. Two-thirds of
countries were unable to determine their burden of acute kidney injury. Given the
substantial heterogeneity in the availability of health information systems, especially
in low-income countries and across nondialysis chronic kidney disease and acute kidney
injury, a global framework for prioritizing development of these systems in areas
of greatest need is warranted.
Keywords
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Crown Copyright © 2017 Published by Elsevier, Inc., on behalf of the International Society of Nephrology. All rights reserved.
